Abstract:

Objective The“transition”program was evaluated about its effect on improving the self-management and quality of life（QOL）among the patients of pediatric liver transplantation. Methods The intervention of the "transition" program was implemented for the research subjects，and the questionnaires were used to conduct pre- and post-intervention investigations. The contents of the questionnaires included basic information，follow-up compliance，self-management ability and quality of life. Results A total of 40 children were included in this study，including 16 males（40%）and 24 females（60%）. The average age of the children was（10.4±2.6）years，the years after transplantation were（8.7±2.0）years，the height was（142.1±15.2）cm，and the weight was（32.9±11.3）kg. The follow-up compliance before the intervention was（3.35±0.72）points （total score was 4 points），among which males were（3.42±0.90）points and females were（3.29±0.59）points.The follow-up compliance after the intervention was（3.52±0.78）points（total score 4 points），of which males were（3.50±0.90）points and females were（3.53±0.72）. There was no significant difference in follow-up compliance between males，females and all population before and after the intervention（P ＞ 0.05）. The self- management score before the intervention was（75.3±11.2）points（total score was 100 points），males were（74.3± 10.9）points and females were（76.0±11.6）points ；after the intervention，the self-management score was（77.7± 12.1）points（total score was 100 points），among which males were（75.5±10.7）and females were（79.3±13.3）. There was no significant difference in self-management scores between males，females and all population before and after the intervention（P ＞ 0.05）. The total score of quality of life before intervention was（71.8±11.7）points，andthe total score of quality of life after intervention was（73.0±10.2）points，and the difference was not statistically significant（P ＞ 0.05）. Conclusion The long-term effect of“transition”program in improving the adherence，self-management and quality of life among the population of pediatric liver transplantation patients should be discussed in the future. 

Key words:

“transition”, Liver transplantation, Quality of life, Self-management, Adherence

摘要：

目的 实施并确认“转换”方案对肝移植患儿术后远期的自我管理能力及生活质量的影响。方法 对研究对象实施“转换”方案的干预，运用调查问卷法进行干预前后调查，问卷内容包括基本资料、随访依从性、自我管理能力以及生活质量。结果 本研究一共纳入 40 例患儿，其中男性 16 例（40%），女性24 例（60%），患儿平均年龄为（10.4±2.6）岁，接受移植后年数为（8.7±2.0）年，身高（142.1±15.2）cm，体重（32.9±11.3）kg。干预前随访依从性为（3.35±0.72）分（总分 4 分），其中男性为（3.42±0.90）分，女性为（3.29±0.59）分，干预后随访依从性为（3.52±0.78）分（总分 4 分），其中男性为（3.50±0.90）分，女性为（3.53±0.72）分，干预前后男性、女性及总体的随访依从性差异均没有统计学意义（P ＞ 0.05）。 干预前自我管理得分为（75.3±11.2）分（总分 100 分），其中男性（74.3±10.9）分，女性（76.0±11.6）分； 干预后自我管理得分为（77.7±12.1）分（总分 100 分），其中男性（75.5±10.7）分，女性（79.3±13.3）分，干预前后男性、女性及总体的自我管理得分差异均没有统计学意义（P ＞ 0.05）。干预前生活质量总分为 （71.8±11.7）分，干预后生活质量总分为（73.0±10.2）分，差异没有统计学意义（P ＞ 0.05）。结论 肝移植患儿术后远期的随访依从性、自我管理能力以及生活质量有较大的提升空间，“转换”方案提升这些指标的远期效果有待于进一步研究。 

关键词:

“转换”, 肝移植 , 生活质量 , 自我管理 , 依从性